Resources

To learn about kidney disease, treatment, and treatment options:

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American Association of Kidney Patients

Provides advocacy, education and interaction for kidney patients

Kidney School

Features educational models for patients and providers about kidney disease and its treatments

Living Donors Online

Provides information for patients, medical professionals and the public

National Kidney Foundation (NKF)

Provides information for patients, medical professionals and the public

PKD Foundation

Offers comprehensive information about polycystic kidney disease

Renal Support Network

Provides non-medical services to those affected by chronic kidney disease, including education about transplantation

Renewal

Provides education, referrals, and logistical support to Jewish patients seeking and receiving living donor transplantation or living donors

Transplant Recipients International Organization (TRIO)

Provides education about transplantation in general, as well as financial issues around transplantation

Transplant Living

Offers information about living donation and supporting patients throughout the process

United Network for Organ Sharing (UNOS)

Provides information and data about transplants, the waiting list, and transplant centers

U.S. Dept. of Health & Human Services

Provides comprehensive information about organ donation and transplantation

To find a transplant center near you:

Organ Procurement and Transplantation Network (OPTN)

Provides a Member Directory that allows patients to search for nearby transplant centers

For financial assistance with transplant:

American Kidney Fund

Educates patients about financial support for treatment, medication, and surgery costs

American Transplant Foundation

Financially assists with lost wages post-surgery and lack of access to essential medications

National Foundation for Transplants

Assists transplant candidates and recipients in raising money for costs not covered by insurance

National Living Donor Assistance Center

Provides financial assistance with travel costs and expenses associated with living organ donation

American Living Organ Donor Network

Saves lives by making it easier for Americans to help other Americans by being living donors

For education about alternative kidney transplant options:

Alliance for Paired Donation

Links transplant candidates with matching potential living donors and provides education about paired donation

Living Donation California

Provides education designed for potential living donors who have not identified a specific recipient

National Kidney Registry

Links transplant candidates with matching potential living donors and provides education about paired donation

United Network for Organ Sharing (UNOS)

Provides information about kidney paired donation and about the Kidney Paired Donation Pilot Program

For learning about Medicare coverage and dialysis:

Centers for Medicare & Medicaid Services (CMS)

Provides resources to compare dialysis facilities and learn about Medicare coverage for End-Stage Renal Disease (ESRD)

To share your story and connect with others:

Care Pages

CarePages.com is an online community where visitors can share the challenges, hopes and triumphs of facing a life-changing health event. Through personalized websites, members can relate their stories, post photos and update friends and family instantly.