Real patient stories inspire and educate

Amanda Lipsey Donation Stories, From the Founder, Transplant News

Some of our earliest memories are of hearing stories read to us by our parents – fairy tales, fables, adventures, and epic journeys. Storytelling is an innate and universal part of the human experience. Stories help us make sense of our lives, mark important occasions, and share and connect with the people who matter to us. From founding myths like the tale of Romulus and Remus to true accounts of heroism, or even casual stories …

Celebrating clarity, saving lives

UCLA Former Users From the Founder

A few days ago, we celebrated a win for everyone affected by kidney disease as one of the uncertainties facing living kidney donors was erased. In response to Congresswoman Jaime Herrera Beutler’s (R-WA) amendment of the Family and  Medical Leave Act, the U.S. Labor Department issued a legal opinion stating its agreement that kidney donation qualifies as a “serious health condition.” The August 28 opinion’s introductory words are as follows: “This letter responds to your …

Explore Transplant: the early years

Amy D. Waterman, PhD From the Founder, Transplant News

Saint Louis, MO – This month we caught up with Christina Goalby, MSW. Christina is the co-creator of the Explore Transplant Provider Training Programs. She’s responsible for the development of Explore Transplant’s Master Trainers and helps to oversee the quality of ET Trainings. Christina has been a nephrology social worker for more than 20 years. Today she’s a Health Literacy Education Manager at Health Literacy Media, the organization that partners with and administers ET’s programs …

The dream drawings

Christina Goalby From the Founder, Transplant News

At the TED 2016 Dream Conference, they had two artists stationed outside the Main Stage, sitting at tilted drawing desks, waiting. I didn’t notice them at first. Hundreds of people milled all around them, busy ordering coffee from the barista and checking their messages before the next session. But, I am a fan of artists and I love tilted drawing desks. A nice TED volunteer handed me a pink blanket and a journal and asked …

Living in the light

Christina Goalby From the Founder, Transplant News

I have just spent five days at the TED Dream 2016 Conference being moved to tears by the passion and efforts of people who honor the beauty of all humankind and who are fighting, hard, to make the world a better place. I am a UCLA Associate Professor and run the Transplant Research and Education Center to help more people learn about and consider donating kidneys to one another. This is my first big TED …

An introvert at TED

Christina Goalby From the Founder, Transplant News

I am a TED virgin, the definition of a person who has never attended the Big TED conference before. I am also a TED introvert. Dr. Brian Little, a personality psychologist, gave a TED talk Tuesday explaining that introverts step out of their boxes only for important projects. Know what an introvert’s project is and you know their motivation. Having the opportunity for collaborative brainstorming with smart people about the organ donor shortage is definitely …

Dreaming big is not for the faint of heart

Christina Goalby From the Founder, Transplant News

The TED Dream 2016 conference is not for the faint of heart. I know a lot about my field of kidney transplantation and patient education. Every day in my UCLA research lab, I work with transplant professionals, conduct research, write journal articles, and design and test whether new educational programs work. Before TED started, I flew in early to give a Grand Rounds talk to the entire transplant community in Vancouver. However, I came to …

Love large, dream larger

Christina Goalby From the Founder, Transplant News

It’s Valentine’s Day, a day to be grateful for the love in our lives and the impact we all can have on each other. This week, I have the privilege of being at the 2016 TED Dream conference in Vancouver, BC with a lot of other people who, like me, have big dreams. I work at UCLA in kidney transplantation. I am a transplant educator – you can read more at www.exploretransplant.org, and follow me …

On your mark…get set…TED!

Karen Handelman From the Founder

Helping solve the kidney shortage was something that, Amy Waterman, Ph.D., an Associate Professor and national transplant educator, dreamed of doing when she was growing up in Knoxville, TN. But to do that, she needed to surround herself from as many smart and diverse people as she could. When she moved to Los Angeles in 2013 to work at UCLA, a friend told her that her favorite week of the year was when she attended …

Welcome from the founder

Amy D. Waterman, PhD From the Founder

by Amy Waterman, PhD The first thing I say after I tell people that I work in the field of transplantation is that it is a true honor and a privilege. I feel this in my bones. I feel this so strongly because I get to see the best of humanity and healthcare, every day. I know so many generous donors who offer a part of their body to help someone else. Some of these …