Important Takeaways from the American Association of Kidney Patients Annual Patient Meeting

Rachyl Pines Transplant News

By Erica Ho, Research and Education Associate On September 11, I attended Day 1 of the American Association of Kidney Patients (AAKP) National Patient Meeting. AAKP is the oldest and largest kidney patient organization in the United States and its mission is to improve the lives of kidney patients through education, advocacy, and community engagement. The National Patient Meeting is an annual event where members of the kidney community can access the latest news and …

The Importance of Tailored Education to Address Transplant Disparities

Rachyl Pines Transplant News

By Annika Pearson, Guest TREC Communication Writer A recent study titled, “Ethnic background is associated with no live kidney donor identified at the time of first transplant assessment—an opportunity missed? A single-center retrospective cohort study”, suggests that people from different minority ethnicity groups are not given the same amount or quality of information about their options for managing chronic kidney disease or for renal replacement therapies like transplantation, as others. Research has shown that patients …

A Recent TREC Publication on the Power of a Digital Library of Living Donor Stories

Rachyl Pines New Publications, Transplant News

By Erica Ho, Research Associate There are over 740,000 people in the United States living with end-stage kidney disease (ESKD)1,2, but only around 6500 transplants are performed every year due to a severe shortage in available kidneys2. Problems like limited kidney transplant education and medical mistrust make it difficult for enough donors and recipients to be matched3,4. Storytelling has been proven to be an effective strategy in increasing education and awareness for other health issues …

Surveying Spanish-Speaking Kidney Patients

Rachyl Pines Donation Stories, Transplant News

By Yaquelin Arevalo Iraheta, Junior Research Associate. Using an interpreter is worse than having both the patient and provider speak the same language because it loses the personal and intimate element between both parties. Breaking the language barrier that Spanish-speaking patients face when receiving healthcare can also help them overcome cultural barriers such as mistrust of their provider. One of the research projects going on at the Transplant Research and Education Center (TREC) involves surveying …

Intern, Sarah Brecher Shares About her Time as an Intern at TREC

Rachyl Pines Staff Updates

By, Sarah Brecher, Intern My name is Sarah Brecher and over the last two years, I have served as an intern at the Transplant Research and Education Center (TREC). I initially entered the lab as a sophomore interested in the basic principles of preventing disease and promoting health through public health research. Two years later as I enter my senior year at UCLA, the work at the lab has increased my commitment to public health …

Announcing the launch of the Listening & Resource Center (KTLRC) & bilingual educational guide

Rachyl Pines COVID-19, Transplant News

By Emily H. Wood, Research Associate The Transplant Research and Education Center (TREC), has launched the COVID-19 Kidney / Transplant Listening & Resource Center (KTLRC). The KTLRC is a toll-free call center that allows patients, their loved ones, and caregivers to connect with our experienced staff to share their questions, concerns, and receive answers, education, and referrals for additional resources. The KTLRC can be reached at: 1-800-830-0484 trec@mednet.ucla.edu We created the KTLRC in direct response …

What it is like to join TREC as a researcher during COVID-19

Rachyl Pines COVID-19, New Research from TREC

By Dr. Rachyl Pines, Postdoctoral Research Fellow My name is Rachyl Pines, and I just finished my PhD in Communication from University of California, Santa Barbara in Communication. This picture is of me defending my dissertation to finish my PhD at home.   My research during my PhD focused on ways we can use communication between doctors and patients to improve patient care in a lot of ways. For example, how can healthcare professionals use …

Recommendations for making transplant education accessible for patients with CKD stages 3-5

Emily Wood New Publications, New Research from TREC, Transplant News

By Grace H. Kim, Research Associate The recent publication, “Recommendations for Systematizing Transplant Education Within a Care Delivery System for Patients with Chronic Kidney Disease Stages 3 to 5”1 by Waterman et al., discusses the findings from a telephone survey of 40 kidney patients, 13 support persons, and 10 providers who were asked about barriers to transplant education and their educational preferences. This review highlights the key barriers identified by chronic kidney disease (CKD) and …

ET @Home improves decision-making for black & low-income patients

Emily Wood New Publications, New Research from TREC, Transplant News

By Anne Osuji, Research Associate & Jessica Nunez, Intern Access to Transplant Education is Unequal There are more than 700,000 Americans with kidneys that can no longer support the needs of the body to remove waste and excess fluid; they have End-Stage Kidney Disease (ESKD).1 Patients with ESKD must either receive frequent dialysis or receive a kidney transplant from a deceased or living donor in order to stay alive. Because waiting for a kidney from …

image of Explore Transplant and Explore Living Donation covers in English and Spanish

It’s time to get your new and improved kidney transplant education materials!

UCLA Former Users Transplant News

Did you hear? Explore Transplant and Explore Living Donation education has been fully revised with evidence-based health literate best practices, and it’s now ready for purchase! These programs, available in English and Spanish, have helped tens of thousands of kidney patients and their loved ones make informed choices about treatment. Health Literacy Media worked with Dr. Amy Waterman to revise her gold standard kidney transplant education programs with a health literacy lens to bring impactful, …

Explore Transplant educational materials and trainings available

UCLA Former Users Transplant News

In this short video, Explore Transplant’s Christina Goalby, MSW and HLM’s Director of Partnerships and Initiatives Allen Todd discuss educational opportunities available to the transplant community. These include Explore Transplant and Explore Living Donation educational materials and trainings to educate dialysis providers about kidney transplant and living donation.

New resource for kidney patients, the UNOS Kidney Transplant Learning Center

UCLA Former Users Transplant News

Where should a kidney patient or potential living donor go online to get comprehensive information about transplant and living donation? How do they know that the information available online can be trusted to be accurate and unbiased? In June 2016, nationally recognized transplant and kidney disease education experts were invited to take part in President Obama’s Organ Donation Summit to improve outcomes for individuals waiting for organ transplants and enhance support for living donors. One …

My Transplant Coach – A decision aid for patients with kidney failure

UCLA Former Users My Transplant Coach

Patients with kidney failure have different options when choosing the treatment they feel is best for them, and it’s not always an easy choice to make. According to Dr. Amy Waterman, Professor in the Division of Nephrology at UCLA, and Director of the Transplant Research and Education Center (TREC) at the Terasaki Research Institute, “Patients want to choose the treatment options for kidney failure that help them live the longest. To do that, they have …

Explore Transplant goes international with Explore Transplant Ontario

UCLA Former Users Transplant News

This October, as the fall leaves changed colors, Dr. Amy Waterman flew to Toronto to represent UCLA, Explore Transplant, and Health Literacy Media at the launch of a provincial initiative to increase the rates of living donor kidney transplants in Ontario. Explore Transplant Ontario is one of the interventions being championed for use within the Access to Kidney Transplantation and Living Donation Strategy, an initiative being sponsored by the Ontario Renal Network (ORN) and the …

Kidney transplant and donation education goes national

Amy D. Waterman, PhD Transplant News

Have you ever wondered why people choose to donate a kidney? And whether these donors regret their decision later? Amy Waterman first became interested in organ donation over 20 years ago when she conducted surveys of kidney donors as a graduate student in social psychology at Washington University in St. Louis. “It was amazing that hundreds of living donors we surveyed not only told us that they didn’t regret their decision, but also found it …