Important Takeaways from the American Association of Kidney Patients Annual Patient Meeting

UCLA Former Users Transplant News

By Erica Ho, Research and Education Associate On September 11, I attended Day 1 of the American Association of Kidney Patients (AAKP) National Patient Meeting. AAKP is the oldest and largest kidney patient organization in the United States and its mission is to improve the lives of kidney patients through education, advocacy, and community engagement. The National Patient Meeting is an annual event where members of the kidney community can access the latest news and …

Meet a TREC Fellow: An Interview with Dr. Terri Menser

UCLA Former Users Staff Updates, Transplant News

At TREC, we have assembled a new group of researchers working in transplantation called the TREC Fellows. Over the next few weeks, we will introduce you to each one by summarizing an interview with them conducted by different staff members in the lab. This week, we will learn about Terri Menser and her experience with kidney transplantation research. Interviewer and author: Katia Dahmani, Intern At Houston Methodist, Menser is conducting transplantation research focused on further …

The Importance of Tailored Education to Address Transplant Disparities

UCLA Former Users Transplant News

By Annika Pearson, Guest TREC Communication Writer A recent study titled, “Ethnic background is associated with no live kidney donor identified at the time of first transplant assessment—an opportunity missed? A single-center retrospective cohort study”, suggests that people from different minority ethnicity groups are not given the same amount or quality of information about their options for managing chronic kidney disease or for renal replacement therapies like transplantation, as others. Research has shown that patients …

A Recent TREC Publication on the Power of a Digital Library of Living Donor Stories

UCLA Former Users New Publications, Transplant News

By Erica Ho, Research Associate There are over 740,000 people in the United States living with end-stage kidney disease (ESKD)1,2, but only around 6500 transplants are performed every year due to a severe shortage in available kidneys2. Problems like limited kidney transplant education and medical mistrust make it difficult for enough donors and recipients to be matched3,4. Storytelling has been proven to be an effective strategy in increasing education and awareness for other health issues …

Paired exchange programs offer expanded donor protections to address critical disincentives to living donation

UCLA Former Users Transplant News

By Lizbeth Alvarez, Research Associate In the recent article,  looking at “Removing Disincentives to Kidney Donation: A Quantitative Analysis” 1 McCormick et al., highlight the widespread agreement among researchers, physicians, and policy makers that removing financial disincentives to living kidney donation would increase the number of donors and be a fairer process. The article identified seven disincentives that living donors face, including: Cost of travel and lodging at a transplant center Loss of income due …

The ocean of humanity

UCLA Former Users Transplant News

November 7, 2018, just three weeks ago. It was College Country Night at the Borderline Bar & Grill in Thousand Oaks, California, when a gunman killed 12 patrons and himself. The Borderline Bar & Grill is in easy driving distance of the UCLA Transplant Center, and this shooting felt close to home. The killings in Thousand Oaks are among the 13,000 gun-related deaths recorded as of November 21 of this year (excluding suicides) by the Gun Violence …