Celebrating a year in transplant

Jenny Burman Transplant News

As we approach the year’s end, rushing to meet deadlines and making time for family and friends, I can’t help but pause and take stock in all that we at TREC have accomplished this year. Together with our partners, we’ve published a dozen new papers and abstracts, presented at the American Transplant Conference and the Transplantation Society’s 2018 International Congress and the American Public Health Association’s 2018 Annual Meeting & Expo, launched four new studies …

The ocean of humanity

Jenny Burman Transplant News

November 7, 2018, just three weeks ago. It was College Country Night at the Borderline Bar & Grill in Thousand Oaks, California, when a gunman killed 12 patrons and himself. The Borderline Bar & Grill is in easy driving distance of the UCLA Transplant Center, and this shooting felt close to home. The killings in Thousand Oaks are among the 13,000 gun-related deaths recorded as of November 21 of this year (excluding suicides) by the Gun Violence …

$1.2 million HRSA grant furthering TREC’s research in paired donation

Jenny Burman Do Not Use, Transplant News

It’s one of the frustrations of the kidney shortage that many people want to donate a kidney to a loved one but can’t, because their blood type is not compatible with their intended recipient. If they donated, their kidney would be rejected. In the past, living donors who did not match their recipients simply couldn’t donate at all. The failure to realize those donations was – and is – a true loss of potential kidneys …

Celebrating clarity, saving lives

Jenny Burman From the Founder

A few days ago, we celebrated a win for everyone affected by kidney disease as one of the uncertainties facing living kidney donors was erased. In response to Congresswoman Jaime Herrera Beutler’s (R-WA) amendment of the Family and  Medical Leave Act, the U.S. Labor Department issued a legal opinion stating its agreement that kidney donation qualifies as a “serious health condition.” The August 28 opinion’s introductory words are as follows: “This letter responds to your …

Putting Explore Transplant into action

Jenny Burman Transplant News

One of the ways we at the Transplant Research and Education Center serve kidney patients is through Explore Transplant, a multi-level consortium of the leading experts in transplant, and a key partner in this endeavor is Health Literacy Media (HLM). In order to get the educational tools we have developed to the people who need it most – the patients – HLM does in-person trainings and workshops with dialysis providers and other professionals caring for …

Dr. Waterman on resilience and making a difference

Jenny Burman Transplant News

We are very excited that TREC’s visionary director, Dr. Amy Waterman, is profiled on The M Dash: Live with purpose, MM.Lafleur’s blog celebrating strong women who make a difference. MM.LaFleur designs wardrobes for women who need to look great in public appearances and behind the scenes but don’t have the time to do a lot of shopping – which fits our director to a T. Dr. Waterman’s profile in MM.LaFleur’s “Women of the Week” column …

image of Explore Transplant and Explore Living Donation covers in English and Spanish

It’s time to get your new and improved kidney transplant education materials!

UCLA Former Users Transplant News

Did you hear? Explore Transplant and Explore Living Donation education has been fully revised with evidence-based health literate best practices, and it’s now ready for purchase! These programs, available in English and Spanish, have helped tens of thousands of kidney patients and their loved ones make informed choices about treatment. Health Literacy Media worked with Dr. Amy Waterman to revise her gold standard kidney transplant education programs with a health literacy lens to bring impactful, …

Unequal access to living donor kidney transplant

UCLA Former Users Transplant News

When someone’s kidneys fail, a transplant may be their best treatment option. Unfortunately, there are not enough kidneys for the almost 100,000 people who are waiting for a kidney in the United States today. The mission of the United Network of Organ Sharing is to reduce the organ donor shortage and ensure equal access to transplants for all Americans. Living donor kidney transplant (LDKT), where a friend or a family member donates a kidney to …

Does shipping a kidney from a live donor hurt the chances of a successful transplant?

UCLA Former Users Transplant News

You’ve watched it unfold on television or the big screen. A doctor, racing against time, removes a kidney and places it into a cooler, and an assistant runs it to a waiting helicopter. It’s flown to another hospital, and is placed into the waiting patient with seconds to spare. In real life, kidneys are often shipped many miles to complete a kidney paired donation (KPD), where a patient who needs a new kidney is matched with …

Explore Transplant educational materials and trainings available

UCLA Former Users Transplant News

In this short video, Explore Transplant’s Christina Goalby, MSW and HLM’s Director of Partnerships and Initiatives Allen Todd discuss educational opportunities available to the transplant community. These include Explore Transplant and Explore Living Donation educational materials and trainings to educate dialysis providers about kidney transplant and living donation.

New resource for kidney patients, the UNOS Kidney Transplant Learning Center

UCLA Former Users Transplant News

Where should a kidney patient or potential living donor go online to get comprehensive information about transplant and living donation? How do they know that the information available online can be trusted to be accurate and unbiased? In June 2016, nationally recognized transplant and kidney disease education experts were invited to take part in President Obama’s Organ Donation Summit to improve outcomes for individuals waiting for organ transplants and enhance support for living donors. One …

My Transplant Coach – A decision aid for patients with kidney failure

UCLA Former Users My Transplant Coach

Patients with kidney failure have different options when choosing the treatment they feel is best for them, and it’s not always an easy choice to make. According to Dr. Amy Waterman, Professor in the Division of Nephrology at UCLA, and Director of the Transplant Research and Education Center (TREC) at the Terasaki Research Institute, “Patients want to choose the treatment options for kidney failure that help them live the longest. To do that, they have …

Explore Transplant goes international with Explore Transplant Ontario

UCLA Former Users Transplant News

This October, as the fall leaves changed colors, Dr. Amy Waterman flew to Toronto to represent UCLA, Explore Transplant, and Health Literacy Media at the launch of a provincial initiative to increase the rates of living donor kidney transplants in Ontario. Explore Transplant Ontario is one of the interventions being championed for use within the Access to Kidney Transplantation and Living Donation Strategy, an initiative being sponsored by the Ontario Renal Network (ORN) and the …

Kidney vouchers – a “golden ticket” for chronological incompatibility

UCLA Former Users Transplant News

An article recently published in Transplantation1 describes the new kidney voucher program, which allows potential kidney donors to donate at a time that works for them, while “reserving” a priority spot on the kidney transplant waitlist for a patient, often a loved one, to be redeemed later. Drs. Jeffrey L. Veale and Amy D. Waterman, both professors at the University of California, Los Angeles (UCLA), are authors on this article. In the voucher program, a donor …

Building bridges – A TRI-UCLA partnership

UCLA Former Users Transplant News

The Terasaki Research Institute (TRI)’s recent Grand Opening celebration, honoring the research and legacy of Dr. Paul Terasaki, was an exciting opportunity to introduce some of the many innovative projects going on at the Institute. The creative workforce behind these projects was present as well, as guests had the opportunity to engage with the group of scientists, researchers, and individuals collaborating together to change the world of transplantation. In addition to the TRI team, the …

The Terasaki Research Institute grand opening: the legacy of Dr. Paul Terasaki

Amy D. Waterman, PhD Transplant News

“We all need inspiration about what is good in this world.” It was only fitting that Dr. Amy D. Waterman made this statement during the Grand Opening celebration of the Terasaki Research Institute (TRI) on September 10, 2017; honoring the day that would have been Dr. Paul Terasaki’s 88th birthday. Dr. Terasaki gave us inspiration on how to do good in this world, and it is our mission at the Transplant Research and Education Center …

Teaming up for success

Amy D. Waterman, PhD Transplant News

Friends and colleagues, I cannot help but feel lucky and grateful that 2017 has brought fresh and exciting new opportunities. In that spirit and effective immediately, I’m thrilled to announce that my research lab, the Transplant Research and Education Center (TREC), is expanding its research and education portfolio. Currently, TREC is an interdisciplinary research and education team that conducts state of the art clinical research to understand and improve important issues affecting transplant outcomes, intervenes …

Explore Transplant: the early years

Amy D. Waterman, PhD From the Founder, Transplant News

Saint Louis, MO – This month we caught up with Christina Goalby, MSW. Christina is the co-creator of the Explore Transplant Provider Training Programs. She’s responsible for the development of Explore Transplant’s Master Trainers and helps to oversee the quality of ET Trainings. Christina has been a nephrology social worker for more than 20 years. Today she’s a Health Literacy Education Manager at Health Literacy Media, the organization that partners with and administers ET’s programs …

Each transplant a joy

Amy D. Waterman, PhD Transplant News

For former dialysis social worker, Marianne Wilson, there was always a compelling connection between the study of human society, its cultures, healthcare, and human behavior—so much so that an undergraduate degree in anthropology blossomed into a post-college job helping low income city homeowners in St. Louis and shortly thereafter, a degree in social work with a health concentration. “Choosing the health concentration in social work training related to previous research I had done on cultures …

Kidney transplant and donation education goes national

Amy D. Waterman, PhD Transplant News

Have you ever wondered why people choose to donate a kidney? And whether these donors regret their decision later? Amy Waterman first became interested in organ donation over 20 years ago when she conducted surveys of kidney donors as a graduate student in social psychology at Washington University in St. Louis. “It was amazing that hundreds of living donors we surveyed not only told us that they didn’t regret their decision, but also found it …