Insights from kidney recipients, living donors and transplant professionals
At the Transplant Research and Education Center (TREC), we believe that rapid communication of information about COVID-19 vaccination to transplant patients and ongoing monitoring of patient outcomes are two important ways to keep our patients safe as we move forward into 2021. In the recent weeks, one of the many SARS-COV-2 vaccines being developed in the United States has been approved by the US Food and Drug Administration (FDA) for Emergency Use Authorization. This vaccine …
By Kimberly Sanchez, Intern In health care, knowledge is power. A knowledgeable patient is able to make informed decisions about their health and wellness. As the Consumer Education Specialist for the UCLA Health, CENTER for Nursing Excellence, Jill Scherrey, MSN, RN, NPD-BC works to provide patients and healthcare consumers the information they want and need for optimal health. A current PhD candidate at the UCLA, School of Nursing, Jill is a pioneer in patient education …
Dr. Amy Waterman, Director of the Transplant Research and Education Center (TREC) and Deputy Director at Terasaki Institute for Biomedical Innovation, has been giving a series of talks about storytelling as an innovative educational tool for kidney and transplant patients at conferences geared to the medical and research community, as well as to patients and donor advocates. As the year draws to a close, Dr. Waterman will have presented to more than 1,000 providers in …
At TIBI and TREC, our interns assist with everything from creating content for our social media pages, transcribing and coding interviews, and developing patient-centered health education. Most choose to receive academic credit for their time in the lab. Our interns come from diverse backgrounds with many different academic concentrations, bringing their unique perspectives and talents to the lab to serve kidney and cancer patients, and living donors. Jessica Nunez is a senior at UCLA double-majoring …
By Erica Ho, Research & Education Associate On November 5th, five million people watched the premiere of a new CBS show about living donation! “B Positive” is a new comedy sitcom following one man’s living donation journey. Drew, a therapist, and single dad, is shocked to find out his kidneys are failing and he’s in urgent need of a transplant. With a rare blood type and lacking friends or family to ask to be his …
By: Alice Yang, Intern & Grace Kim, Research Associate The field of health communication is one that is often overlooked by other researchers but not by Dr. LaShara Davis. Her introduction to the health communication field happened serendipitously after a couple of changes in career paths and prospects. She began her journey as a psychology major, hoping to go into some sort of therapy in the future. However, when she stumbled across the field of …
By Erica Ho, Research and Education Associate On September 11, I attended Day 1 of the American Association of Kidney Patients (AAKP) National Patient Meeting. AAKP is the oldest and largest kidney patient organization in the United States and its mission is to improve the lives of kidney patients through education, advocacy, and community engagement. The National Patient Meeting is an annual event where members of the kidney community can access the latest news and …
By Erica Ho, Research and Education Associate At TREC, we have assembled a new group of researchers working in transplantation called the TREC Fellows. Over the next few weeks, we will introduce you to each one by summarizing an interview with them conducted by different staff members in the lab. Last time, we learned about Terri Menser and her experience with kidney transplantation research. This week we had the chance to talk to Ashley Feinsinger, …
By Alice Yang, Intern Implementing policy changes to improve access to kidney transplants and overcome disparities is an important first step in reaching these goals, but it is not enough. Three major policy changes have aimed at improving end-stage kidney disease outcomes and increasing access to transplants. These include the kidney allocation system (KAS) in 2014, the Advancing American Kidney Health Initiative in 2019, and finally, new changes implemented by the Centers for Medicare and …
At TREC, we have assembled a new group of researchers working in transplantation called the TREC Fellows. Over the next few weeks, we will introduce you to each one by summarizing an interview with them conducted by different staff members in the lab. This week, we will learn about Terri Menser and her experience with kidney transplantation research. Interviewer and author: Katia Dahmani, Intern At Houston Methodist, Menser is conducting transplantation research focused on further …
By Erica Ho, Research Associate On Wednesday, August 4, Dr. Amy Waterman was invited to speak at OneLegacy’s monthly Connecting the Dots Virtual Town Hall. OneLegacy is an organization dedicated to helping people navigate organ, eye, and tissue donations by offering coordination and support services. The topic for this discussion, in accordance with National Minority Donor Awareness Month, was improving diversity and inclusion in healthcare to spread awareness about organ donation among minority groups. Dr. …
By Annika Pearson, Guest TREC Communication Writer A recent study titled, “Ethnic background is associated with no live kidney donor identified at the time of first transplant assessment—an opportunity missed? A single-center retrospective cohort study”, suggests that people from different minority ethnicity groups are not given the same amount or quality of information about their options for managing chronic kidney disease or for renal replacement therapies like transplantation, as others. Research has shown that patients …
By Erica Ho, Research Associate There are over 740,000 people in the United States living with end-stage kidney disease (ESKD)1,2, but only around 6500 transplants are performed every year due to a severe shortage in available kidneys2. Problems like limited kidney transplant education and medical mistrust make it difficult for enough donors and recipients to be matched3,4. Storytelling has been proven to be an effective strategy in increasing education and awareness for other health issues …
By Jessica Nunez, Intern Hello, my name is Jessica Nunez and I am from Santa Clarita, California. I am entering my fourth year at UCLA, majoring in Cognitive Science and Spanish, Community and Culture. I have been interning at Transplant Research and Education Center (TREC) since March 2019. As a freshman, I was overwhelmed with the school dynamic and completed multiple searches in efforts to find a job that encompassed my passions and brought a …
By Yaquelin Arevalo Iraheta, Junior Research Associate. Using an interpreter is worse than having both the patient and provider speak the same language because it loses the personal and intimate element between both parties. Breaking the language barrier that Spanish-speaking patients face when receiving healthcare can also help them overcome cultural barriers such as mistrust of their provider. One of the research projects going on at the Transplant Research and Education Center (TREC) involves surveying …
By, Sarah Brecher, Intern My name is Sarah Brecher and over the last two years, I have served as an intern at the Transplant Research and Education Center (TREC). I initially entered the lab as a sophomore interested in the basic principles of preventing disease and promoting health through public health research. Two years later as I enter my senior year at UCLA, the work at the lab has increased my commitment to public health …
By Rachyl Pines, PhD, Postdoctoral Fellow Dr. Waterman and Dr. Pines are the research committee leads for the National Kidney Registry (NKR), a non-profit organization whose mission is to “save and improve the lives of people facing kidney failure by increasing the quality, speed and number of living donor transplants in the world as well as protecting all living kidney donors.” Learn more about this organization by clicking here. The NKR has been a leader …
By Emily H. Wood, Research Associate The Transplant Research and Education Center (TREC), has launched the COVID-19 Kidney / Transplant Listening & Resource Center (KTLRC). The KTLRC is a toll-free call center that allows patients, their loved ones, and caregivers to connect with our experienced staff to share their questions, concerns, and receive answers, education, and referrals for additional resources. The KTLRC can be reached at: 1-800-830-0484 trec@mednet.ucla.edu We created the KTLRC in direct response …
By Ariana Murillo, Intern There are many ways to maintain a work-life balance while transitioning to working from home due to COVID-19. It can take some time for you (and your family!) to adjust to being at home for most of the day. It will take a lot of trial and error to develop a plan that works best for you. Even if previous days seemed overwhelming or chaotic, ultimately, transitioning to remote work can …
By Dr. Rachyl Pines, Postdoctoral Research Fellow My name is Rachyl Pines, and I just finished my PhD in Communication from University of California, Santa Barbara in Communication. This picture is of me defending my dissertation to finish my PhD at home. My research during my PhD focused on ways we can use communication between doctors and patients to improve patient care in a lot of ways. For example, how can healthcare professionals use …