By Lizbeth Alvarez, Research Associate In the recent article, looking at “Removing Disincentives to Kidney Donation: A Quantitative Analysis” 1 McCormick et al., highlight the widespread agreement among researchers, physicians, and policy makers that removing financial disincentives to living kidney donation would increase the number of donors and be a fairer process. The article identified seven disincentives that living donors face, including: Cost of travel and lodging at a transplant center Loss of income due …
Expanding Medicare coverage for immunosuppressive drugs will save lives and money
By TREC Staff The recently introduced Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act (H.R. 5534) seeks to expand current Medicare coverage for the immunosuppressive drugs that allow transplant recipients to live. These drugs are currently covered for just 36 months post-transplant, despite the lifelong drug regimen required by transplant patients to prevent organ rejection and death. The bill was introduced last year by Reps. Ron Kind (D-Wis.) and Michael Burgess (D-Texas), and has …
Explore Transplant year in review: best of 2019
By Anne Osuji, Research Associate As we enter a new decade, let’s take a moment to reflect on our 2019 year in review. The TREC team had some incredible moments this year, and we are proud to have accomplished so much in 2019! Together with our partners, we launched several new studies, won new grants to further our work, published over a dozen journal articles and abstracts, presented at national conferences including the 2019 American …
Doing good together through the TED Fellows program
Dr. Amy Waterman had her first introduction to TED at TED2016: Dream in Vancouver, Canada. The experience was transformational for her and she decided to take her work in transplant to a large scale, educating as many patients and living donors as possible. Since then, she has gone on to serve as a mentor in the TED Fellows program, which provides individualized feedback, guidance, skills training, and support to Fellows by matching them with a …
Dr. Amy Waterman named the 2019 AST Clinician of Distinction
We are excited to announce that Dr. Amy Waterman has been named the recipient of the 2019 Clinician of Distinction Award by the American Society of Transplantation (AST)! Each year the award is presented to a non-physician clinician who is an expert in their field and who is making outstanding contributions to clinical transplant. This year Dr. Waterman was nominated by Dr. Matthew Cooper, a longtime friend and colleague, and a professor of surgery and …
QIP changes are coming in 2020: Is your dialysis center ready? The Kidney Transplant Toolkit can help
For Professionals in Nephrology, Dialysis, and Transplant: A discussion of CMS ESRD QIP changes that could impact your funding and the Toolkit that will help you be ready CMS requires dialysis centers to increase patients wait-listed for transplant Earlier this year, the Centers for Medicare and Medicaid Services (CMS) announced that, as part of its ESRD Quality Incentive Program (QIP) starting January 1, 2020, dialysis facilities will be required to report their Percentage of Prevalent …
Real patient stories inspire and educate
Some of our earliest memories are of hearing stories read to us by our parents – fairy tales, fables, adventures, and epic journeys. Storytelling is an innate and universal part of the human experience. Stories help us make sense of our lives, mark important occasions, and share and connect with the people who matter to us. From founding myths like the tale of Romulus and Remus to true accounts of heroism, or even casual stories …
Strategic partnership is more than a set of opening moves
We are pleased to share the following contribution, from our partner Catina O’Leary, PhD, Health Literacy Media president and CEO. The game of chess starts with the opener – a set of moves that, to the untrained eye, might seem mundane and inconsequential. To the expert, though, the opener is an essential strategic step. A well-chosen set of opening moves can ensure victory, while the wrong ones can cost a player the game. Indeed, any …
Celebrating a year in transplant
As we approach the year’s end, rushing to meet deadlines and making time for family and friends, I can’t help but pause and take stock in all that we at TREC have accomplished this year. Together with our partners, we’ve published a dozen new papers and abstracts, presented at the American Transplant Conference and The Transplantation Society’s 2018 International Congress and the American Public Health Association’s 2018 Annual Meeting & Expo, launched four new studies …
The ocean of humanity
November 7, 2018, just three weeks ago. It was College Country Night at the Borderline Bar & Grill in Thousand Oaks, California, when a gunman killed 12 patrons and himself. The Borderline Bar & Grill is in easy driving distance of the UCLA Transplant Center, and this shooting felt close to home. The killings in Thousand Oaks are among the 13,000 gun-related deaths recorded as of November 21 of this year (excluding suicides) by the Gun Violence …
$1.2 million HRSA grant furthering TREC’s research in paired donation
It’s one of the frustrations of the kidney shortage that many people want to donate a kidney to a loved one but can’t, because their blood type is not compatible with their intended recipient. If they donated, their kidney would be rejected. In the past, living donors who did not match their recipients simply couldn’t donate at all. The failure to realize those donations was – and is – a true loss of potential kidneys …
Celebrating clarity, saving lives
A few days ago, we celebrated a win for everyone affected by kidney disease as one of the uncertainties facing living kidney donors was erased. In response to Congresswoman Jaime Herrera Beutler’s (R-WA) amendment of the Family and Medical Leave Act, the U.S. Labor Department issued a legal opinion stating its agreement that kidney donation qualifies as a “serious health condition.” The August 28 opinion’s introductory words are as follows: “This letter responds to your …
Putting Explore Transplant into action
One of the ways we at the Transplant Research and Education Center serve kidney patients is through Explore Transplant, a multi-level consortium of the leading experts in transplant, and a key partner in this endeavor is Health Literacy Media (HLM). In order to get the educational tools we have developed to the people who need it most – the patients – HLM does in-person trainings and workshops with dialysis providers and other professionals caring for …
Dr. Waterman on resilience and making a difference
We are very excited that TREC’s visionary director, Dr. Amy Waterman, is profiled on The M Dash: Live with purpose, MM.Lafleur’s blog celebrating strong women who make a difference. MM.LaFleur designs wardrobes for women who need to look great in public appearances and behind the scenes but don’t have the time to do a lot of shopping – which fits our director to a T. Dr. Waterman’s profile in MM.LaFleur’s “Women of the Week” column …
It’s time to get your new and improved kidney transplant education materials!
Did you hear? Explore Transplant and Explore Living Donation education has been fully revised with evidence-based health literate best practices, and it’s now ready for purchase! These programs, available in English and Spanish, have helped tens of thousands of kidney patients and their loved ones make informed choices about treatment. Health Literacy Media worked with Dr. Amy Waterman to revise her gold standard kidney transplant education programs with a health literacy lens to bring impactful, …
Unequal access to living donor kidney transplant
When someone’s kidneys fail, a transplant may be their best treatment option. Unfortunately, there are not enough kidneys for the almost 100,000 people who are waiting for a kidney in the United States today. The mission of the United Network of Organ Sharing is to reduce the organ donor shortage and ensure equal access to transplants for all Americans. Living donor kidney transplant (LDKT), where a friend or a family member donates a kidney to …
Does shipping a kidney from a live donor hurt the chances of a successful transplant?
You’ve watched it unfold on television or the big screen. A doctor, racing against time, removes a kidney and places it into a cooler, and an assistant runs it to a waiting helicopter. It’s flown to another hospital, and is placed into the waiting patient with seconds to spare. In real life, kidneys are often shipped many miles to complete a kidney paired donation (KPD), where a patient who needs a new kidney is matched with …
Explore Transplant educational materials and trainings available
In this short video, Explore Transplant’s Christina Goalby, MSW and HLM’s Director of Partnerships and Initiatives Allen Todd discuss educational opportunities available to the transplant community. These include Explore Transplant and Explore Living Donation educational materials and trainings to educate dialysis providers about kidney transplant and living donation.
New resource for kidney patients, the UNOS Kidney Transplant Learning Center
Where should a kidney patient or potential living donor go online to get comprehensive information about transplant and living donation? How do they know that the information available online can be trusted to be accurate and unbiased? In June 2016, nationally recognized transplant and kidney disease education experts were invited to take part in President Obama’s Organ Donation Summit to improve outcomes for individuals waiting for organ transplants and enhance support for living donors. One …
My Transplant Coach – A decision aid for patients with kidney failure
Patients with kidney failure have different options when choosing the treatment they feel is best for them, and it’s not always an easy choice to make. According to Dr. Amy Waterman, Professor in the Division of Nephrology at UCLA, and Director of the Transplant Research and Education Center (TREC) at the Terasaki Research Institute, “Patients want to choose the treatment options for kidney failure that help them live the longest. To do that, they have …