2020 Year in Review: championing patient-centered work

UCLA Former Users Staff Updates, Transplant News

By Brian Ha, Intern With 2020 winding down, let’s take a moment to reflect on all that we have accomplished this year for the transplant and living donation community. Together with our partners, we launched the COVID-19 Kidney / Transplant Listening and Resource Center, designed new education for living donors and transplant recipients in partnership with the community, presented our work on digital storytelling and innovative education tools at talks and conferences hosted by the …

Listening to the transformational experience of kidney patients and living donors

UCLA Former Users Donation Stories, Staff Updates

By Ally Zweigle, Intern Throughout my time at TREC, I progressed from knowing very little about what kidney disease is like for those who have it, let alone its astounding effects on both the diagnosed individual as well as those around them, to being convinced that I should someday donate my own kidney to someone in need. Perhaps this was a consequence of one of my internship assignments, which was to code video submissions for …

The power of digital storytelling featuring recipients and donors from the Living Donation Storytelling Project

UCLA Former Users Donation Stories

By Jessica Nunez, Intern On November 20, 2020, Dr. Waterman gave a talk titled “The Power of Digital Storytelling to Educate, Empower, and Engage Patients and Prospective Donors” as part of a virtual series hosted by the Terasaki Institute for Biomedical Innovation. You can view the full talk here. The talk highlighted the Transplant Research and Education Center (TREC)’s Living Donation Storytelling Project, which aims to share the real-life testimonies of living kidney donors and …

Dr. Waterman shares about the power and science of storytelling

UCLA Former Users New Research from TREC, Staff Updates, Transplant News

Dr. Amy Waterman, Director of the Transplant Research and Education Center (TREC) and Deputy Director at Terasaki Institute for Biomedical Innovation, has been giving a series of talks about storytelling as an innovative educational tool for kidney and transplant patients at conferences geared to the medical and research community, as well as to patients and donor advocates. As the year draws to a close, Dr. Waterman will have presented to more than 1,000 providers in …

Real patient stories inspire and educate

Amanda Lipsey Donation Stories, From the Founder, Transplant News

Some of our earliest memories are of hearing stories read to us by our parents – fairy tales, fables, adventures, and epic journeys. Storytelling is an innate and universal part of the human experience. Stories help us make sense of our lives, mark important occasions, and share and connect with the people who matter to us. From founding myths like the tale of Romulus and Remus to true accounts of heroism, or even casual stories …