Leander family after transplant, circa 2000

27 years later: Sheila’s living donation story

Karen HandelmanDonation Stories, Transplant News

It’s a golden anniversary for me! On December 27th, it will be 27 years since I donated a kidney to my husband. Yes, a living kidney donor for 27 years. in photo: (l to r) Sheila Adams-Leander (donor), Eric Leander (son), and Brian Leander (recipient). Eric was 11 years old at the time of our donation/transplant. When we came home from a June family vacation, my husband felt like he had a cold. When he …

Patient Engagement & Research Lab team at Houston Methodist

2022: A year of transition

Karen HandelmanFrom the Founder, Staff Updates, Transplant News

The research team representing the Patient Engagement and Research Lab, now based in Houston, Texas, ends the year very grateful to be together. Thanks to the support and mentorship of Drs. Osama Gaber, Chief of Surgery at Houston Methodist Hospital, and Mark Ghobrial, Medical Director of Transplant Center, Dr. Amy Waterman was recruited to Houston Methodist Hospital and J.C. Walter Jr. Transplant Center to establish a broader Patient Engagement and Research Lab to advocate for …

Frank Dewhurst, an 84 year old living donor with Paulette, the recipient

How old is too old: an interview with Frank Dewhurst, an 84 year old living donor

Karen HandelmanDonation Stories, Transplant News

Written by Martha Gershun, Guest Blogger How old is too old to donate a kidney? Well, Frank Dewhurst of Austin, TX was 84 years old when he successfully donated a kidney in 2019 at Houston Methodist Hospital, making him the oldest person in the United States to become a living kidney donor. Frank graciously consented to a virtual interview with me, a living donor myself, to share more about his journey to becoming a living …

Our first Transplant Games: what we learned from attending the 2022 Transplant Games of America

Former StaffTransplant News

Written by Alexis Bobu, Scientific Writer, Houston Methodist Hospital Department of Surgery and J.C. Walter, Jr. Transplant Center    “Meeting transplant patients and families for the first time was meaningful and fulfilling, adding depth to the work that we do.”   The city of San Diego hosted the 2022 Transplant Games of America on July 29 – August 3, 2022 bringing back the world’s largest celebration of life to the transplant community after being canceled in 2020 …

Does age matter?

Former StaffTransplant News

Written by Martha Gershun, Guest Blogger   “I’m probably too old to be a kidney donor,” is a very common concern for those considering living donation.  I know age was very much on my mind when, at age 60, I volunteered to donate to a 56-year-old woman I read about in our local newspaper.  I had recently received a letter from Be The Match®, the national bone marrow donor registry informing me that I would “age …

Prioritizing patient priorities nationally: Key takeaways from the People Driven Transplant Metrics Consensus Conference

Former StaffTransplant News

Written by Alexis Bobu, Scientific Writer, Houston Methodist Hospital Department of Surgery and J.C. Walter, Jr. Transplant Center   The Scientific Registry of Transplant Recipients (SRTR) hosted the People Driven Transplant Metrics Consensus Conference in Bloomington, Minnesota on July 18 – 20th, 2022 to develop priorities to expand transplant metrics to better include what is important to transplant patients, donors, and those that love them. For two days at the Mall of America, patients, living donors, …

Let’s give living donors a checklist

Former StaffTransplant News

Written by Martha Gershun, Guest Blogger    When I first called the transplant center to offer to donate one of my kidneys to a woman I read about in the newspaper, I didn’t know anything about the process.  There were a few paragraphs on the center’s website on a page labeled “Living-donor transplantation.” That was it.  When I called the phone number in the newspaper, I assumed I would learn more. But the person who answered …

Meet our undergraduate research intern: Alexa Sokhon

Former StaffTransplant News

Hello everyone! My name is Alexa Sokhon and I am from Lebanon. I am an upcoming senior at Baylor University in Waco, Texas, majoring in Cell and Molecular Biology with a minor in Medical Humanities. This summer, I had the prestigious opportunity to be a research intern with the Department of Surgery and J.C. Walter Jr. Transplant Center at the Houston Methodist Hospital. I worked alongside Dr. LaShara Davis and Dr. Amy Waterman, who leads …

Telling your story: the power of online storytelling for living kidney donors

Former StaffTransplant News

By Martha Gershun, Guest Blogger  Sharing stories helps people connect and learn from each other in powerful and unique ways. It also allows the storyteller to process their own experiences as they structure and organize their personal narrative to offer to others. The Living Digital Storytelling Project is a compelling, user-friendly platform for real-life living donation stories that provides first-person information about the challenges and benefits of living kidney donation in order to help others …

Mentoring program to promote inclusivity in biomedical research

Former StaffTransplant News

Written by Vandana Suresh, PhD, Communication & External Relations, Houston Methodist Academic Institute    Houston Methodist’s Amy Waterman and LaShara Davis are participating in the National Heart, Lung and Blood Institute Programs to Increase Diversity Among Individuals Engaged in Health-Related Research.  Even before his official foray into politics, former President Barack Obama looked up to South African leader-humanitarian-activist Nelson Mandela for inspiration — Mandela’s release from prison gave Obama “a sense of what human beings can …

A belated explanation and an interconnected possibility by Amy Waterman, PhD

Former StaffTransplant News

At the end of June, I will have worked at Houston Methodist Hospital and J.C. Walter Jr. Transplant Center for nine months as Director of Patient Engagement, Diversity, and Education. A common question that I continue to hear is, “Why did you move from University of California, Los Angeles (UCLA) and the Terasaki institute for Biomedical Innovation (TIBI) to Houston, Texas?” Here is my belated explanation. It is true that my professional experience working at …

Martha Gershun with her book cover Kidney to Share

Kidney to share

Karen HandelmanDonation Stories, New Publications, Transplant News

Introducing Martha Gershun, New Living Donation Guest Blogger In 2018 I donated a kidney at the Mayo Clinic to a woman I read about in the newspaper (1). Deb Porter Gil was in her mid-50s; the mother of two young adult daughters; a retired attorney, raised in Kansas City, where I lived; who had recently moved to Ft. Lauderdale, Florida. Decades before, while still in law school in Kansas City, Deb had been diagnosed with …

New opportunities await!

Former StaffFrom the Founder, Staff Updates, Transplant News

I want to thank everyone associated with the Terasaki Institute of Biomedical Innovation for the incredible opportunity to serve as the Deputy Director of Personalized Transplant Education and Communication. The CEO, Dr. Ali Khademhosseini, the President, Mr. Stewart Han, and the Terasaki Family Foundation have fully supported my advocacy work with transplant patients and helped me honor Dr. Paul Terasaki’s legacy. It’s been a productive four years! During this time, my research team published over …

Addressing insurance-related disparities in kidney transplant access

Former StaffStaff Updates, Transplant News

By Mindy Kim, Intern The large costs of kidney transplants are no secret; however, the impacts of insurance type on kidney transplant are often overlooked. Most patients in the United States have some form of public insurance (Medicare or Medicaid), private insurance, or are uninsured. In 2018, 32.3% of patients with prevalent end-stage renal disease only had Medicare coverage, 20.8% had non-Medicare insurance, and the remainder of patients had some form of dual or add-on …

TREC partners with Transplant Recipients International Organization to launch the Post-Transplant Cancer Project

Former StaffTransplant News

By Erica Ho, Senior Research and Education Associate Post-transplant cancer (PTC) is one of the leading causes of death among organ and tissue transplant recipients. This is because the immunosuppressive medicines recipients need to take to prevent graft rejection weakens their immune system, increasing their risk of developing cancer by 2-3 times compared to the general population.1 However, many cancers, if detected early enough, can be treated and transplant recipients can continue living long and …

A recap of Dr. Waterman’s participation at the National Academies of Science, Engineering, and Medicine’s virtual public webinar

Former StaffOur Lab in the News, Transplant News

By Erica Ho, Senior Research & Education Associate On Friday April 16, Dr. Amy Waterman spoke at the National Academies of Science, Engineering, and Medicine’s virtual public webinar, “A Fairer and More Equitable, Cost-Effective, and Transparent System of Donor Organ Procurement, Allocation, and Distribution”. This webinar was held to educate the public on two important aspects of the current state of deceased donor organ transplantation in the country. The morning session comprised of medical leaders …

Highlights from the “What do I need to know about the COVID-19 vaccines & transplant vaccine trial” panel

Former StaffCOVID-19, Transplant News

By Erica Ho, Research and Education Associate With the first doses of COVID-19 vaccines being rolled out, kidney and transplant patients have had many important questions about how the Pfizer and Moderna vaccines may affect their health and treatment regimens. To help get these questions answered, the Terasaki Institute for Biomedical Innovation and its Deputy Director, Dr. Amy Waterman, hosted an informational panel called, “What do I need to know about the COVID-19 vaccines & …

The global burden of chronic kidney disease

Former StaffTransplant News

By Erica Ho, Research Associate Did you know that approximately 13% of the world’s population has chronic kidney disease (CKD), and over 10% have end-stage kidney failure1? In the 1990’s, CKD was the 17th most common cause of death in the world, but has risen to 12th by 20172. This may be because previous efforts to reduce CKD and CKD-related mortality either have not been successful, or do not exist. This is an even more …

2020 year in review: championing patient-centered work

Former StaffStaff Updates, Transplant News

By Brian Ha, Intern With 2020 winding down, let’s take a moment to reflect on all that we have accomplished this year for the transplant and living donation community. Together with our partners, we launched the COVID-19 Kidney / Transplant Listening and Resource Center, designed new education for living donors and transplant recipients in partnership with the community, presented our work on digital storytelling and innovative education tools at talks and conferences hosted by the …

COVID-19 vaccine vials

COVID-19 vaccine FAQs and recommendations for transplant patients

Karen HandelmanCOVID-19, From the Founder, Transplant News

At the Transplant Research and Education Center (TREC), we believe that rapid communication of information about COVID-19 vaccination to transplant patients and ongoing monitoring of patient outcomes are two important ways to keep our patients safe as we move forward into 2021. In the recent weeks, one of the many SARS-COV-2 vaccines being developed in the United States has been approved by the US Food and Drug Administration (FDA) for Emergency Use Authorization. This vaccine …